AIDS, Deafness, faith, Prayer

The Real Snow White Knows Sign Language

He who goes out weeping, carrying seed for sowing, will certainly come again with joy, carrying his sheaves.—Ps. 126:6

“I want to go see Mickey Mouse and the REAL Snow White,” Maegan signed while I interpreted for the Make A Wish representative in the summer of 1994….

They had called in a woman who knew sign language to help with the meeting, so they could be sure that it was truly Maegan’s wish and not ours. It was hard to imagine that a parent would lie or hijack their child’s dying wish, but it was pretty clear to everyone that day what Maegan’s true desires were, as she cupped both hands on top of her head to imitate Mickey’s ears. Her eyes sparkled with hope and soon we were on our way.

It would be a magnificent week that we would never forget. We stayed in a lovely cottage at Give Kids the World, a non-profit resort that provides week-long, cost-free vacations to critically ill children and their families. We received the “royal treatment”, with tickets to all the theme parks and fun restaurants at Disney’s Magic Kingdom, Universal studios and Sea World. Maegan wore a button that alerted park employees that she was a “special guest.” As soon as someone would see her button, we would be ushered through a private passageway to the front of every ride line. We would also be invited to go backstage and meet the characters at every show. I’ll never forget the look on Maegan’s face when she realized Fievel was writing her name in the autograph book. “He KNOWS MY NAME!” she signed excitedly and I didn’t have the heart to tell her that he had read her button. And then there was the day I heard shrieking from across the room, as Maegan came running toward me, arms flailing. “MOM! The REAL. SNOW. WHITE. KNOWS. SIGN. LANGUAGE!”  Sure enough, the beautiful princess signed, “My name is Snow White. I live in the Magic Kingdom.” I don’t think Maegan’s feet touched the ground the whole week. And what a gift to have a break from the “real life” of IV’s, high fevers and hospital stays. I thank God she felt healthy that week, as I noticed several of the other children did not feel as well.

I spent time back then in the small chapel, praying for Maegan, for us and the other families. As amazing as the resort was, you could not help but notice the heaviness each family carried, and the weariness in their eyes. I wept for them and for us, for the uncertainty of the days ahead.

On the last day, Maegan wrote her name on a star that they would place in the castle of miracles. Maegan lived for two more years after that trip, and I always wondered if we would ever be able to return. In the past 30 years, there have been thousands of stars placed in the castle, but on a recent trip back there, the staff members helped us find Maegan’s star. We showed Savannah around, told stories, met some of the children and again went into the chapel to pray for strength, healing and hope for the brave families battling illness both there and back home.

I opened up the Bible that was near the altar, and it fell to this passage from Psalm 126… “They that sow in tears shall reap in joy. He that goeth forth and weepeth, bearing precious seed, shall doubtless come again with rejoicing, bringing his sheaves with him.” When you study it out, the picture is that of the farmer, carrying “precious seed” to the earth, weeping because he is weary, and knows not what will become of the seed once he releases it. The Hebrew word for “bearing” is “nasa”, which means “endure” and to “look up”. The farmer knows not what will become of the seed, but he must “look up” and trust God will bless it and multiply it back to him.

When Maegan died, God spoke to my heart, “Unless a grain of wheat falls into the ground and dies, it cannot produce a harvest.” Since her death, millions have been touched through her faith God through articles and posts. Now I am working with an editor to have a book published! Part of the “harvest” comes from teaching young people to find their purpose as she did. You take part in “sowing” through partnership and you will reap!

What else could you “sow”? Time in service or mentoring someone? Volunteering at a place like Give Kids the World or a hospital? Maybe you feel like something has been “taken” from you, whether it is in loss of finances or friendship or health. Consider “sowing” it instead. It’s okay to weep and to be uncertain of the future, just as we were years ago. But let your tears water the soil of your heart, as you pray and lift up your eyes to the only One who can bring Growth. He KNOWS YOUR NAME!! Watch for His “Sign Language” and trust Him for a great harvest.

 

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